Severe ME/CFS

May 212 min read

Love Breaks Through

Three short videos to help caregivers of a loved one with severe ME or long Covid.

84 views0 comments

Aug 8, 20238 min read

Severe ME/CFS and Suicide

There are many diseases with no cure. But those are diseases that the world understands, empathizes with, and validates.

325 views0 comments

May 11, 20237 min read

Crash Prevention

Crash prevention and extreme rest might keep ME/CFS and Long Covid from getting worse.

3,157 views0 comments

Mar 20, 20232 min read

The Gurney Guide for Severe ME Transportation

An extensive guide helps you find and use gurney (stretcher) transportation.

1,959 views0 comments

Oct 28, 202210 min read

A Kick in the Teeth

Basic needs, like dental care, are ignored for bed-bound severely ill patients until it's an emergency. And then you wait.

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Sep 11, 202212 min read

Severe ME Communications

A guide to understanding and communicating with severe Long Covid and ME sufferers with few or no words.

797 views0 comments

Sep 8, 20226 min read

Toileting in the Bed

Seeing the effort and difficulty, the PEM, I should have begun toileting him in the bed sooner. But I had no guidance like this.

1,802 views0 comments

Aug 8, 20224 min read

A Journal of James

This is a chapter from a forthcoming memoir chronicling my experience as I care for my adult son, James Strazza, with Very Severe ME/CFS.

610 views0 comments

Galen Warden