Crash prevention and extreme rest might keep ME/CFS and Long Covid from getting worse.

Links to research and medical descriptions of ME.

Three short videos to help caregivers of a loved one with severe ME or long Covid.

There are many diseases with no cure. But those are diseases that the world understands, empathizes with, and validates.

Being overwhelmed with stress wasn't helping James. I got a caregiver.

An extensive guide helps you find and use gurney (stretcher) transportation.

Getting a bed-bound person to the doctor should not be impossible.

Caring for a Severe ME son requires battling monsters, especially your own.

Basic needs, like dental care, are ignored for bed-bound severely ill patients until it's an emergency. And then you wait.

A guide to understanding and communicating with severe Long Covid and ME sufferers with few or no words.

Seeing the effort and difficulty, the PEM, I should have begun toileting him in the bed sooner. But I had no guidance like this.

This is a chapter from a forthcoming memoir chronicling my experience as I care for my adult son, James Strazza, with Very Severe ME/CFS.

I bring my A Game into the room. Into the dark I bring my quiet. No talking: A new language to memorize, practice, repeat. Conversation...